Evan should be coming home tomorrow. He hasn't had any episodes for over 4 days (it will be 5 days tonight). So everything is "on track" as the nurse told me this morning.
Evan really wants to come home. Last night when JR and I arrived, the nurse was holding him and rocking him and telling us he didn't sleep, that when she tried to put him in his bed he cried out as if the bed was full of needles. I gave him his bottle, and he was so sleepy.

He even slept through the burping...

Then he fell into a deep, peaceful sleep on Daddy's chest. What was that nurse talking about? When we come in, when
we hold him, he is so calm! Hahaha. When we put him back in his bed he woke up, and almost cried but I patted him and tried to soothe him. He wants to come home, he wants to be with his Mommy and Daddy all the time.
He is doing so well and is really like a "normal newborn" now. As the doctors and JR's aunt (also a doctor!) told me, when he comes home I cannot think of him any longer as a sick or abnormal baby. When he comes home, we have to treat him like the normal, healthy baby he now is. Strange as it may sound, it will be a difficult adjustment after being connected both physically and emotionally to all those monitors and machines. But nothing can make me happier knowing our little Evan is healthy, and will be with us home soon.
Hopefully, the next posting and photos will be of his homecoming, a new birth.